IMPORTANT NOTE
if you wish to report an adverse event related to one of our products, please contact your healthcare provider. In addition you can contact us using your local safety officer or via UCBCares.
HS Patient Resources
Whether you or someone you know is currently struggling with Hidradenitis Suppurativa (HS), we’re here to help. We’ve been working closely with a group of patients with HS, who are members of Patient Advocacy Groups across Europe, to hear first-hand what it is like to live with HS.* Together with this group, we’ve created a range of downloadable tools designed to support people through every step of their HS journey. From tips and tricks for managing HS to myth-busting guides, click below to find a wealth of information.
We would like to thank patient representatives of the following organisations:
• Asociación de Enfermos de Hidrosadenitis (ASENDHI) in Spain;
• Solidarité Verneuil in France;
• Psoriasis- og Eksemforbundet in Norway;
• Hidradenitis Patiënten Vereniging in The Netherlands;
• AMICUS: Hidradenitis Suppurativa (HS) - Fundacja Amicus in Poland;
• EPIDERMIA (Panhellenic Association of Patients with Psoriasis and Psoriatic Arthritis) in Greece
Patient Support Programmes
As part of our commitment to patients and to further the understanding of severe diseases, UCB supports a number of programmes for patients and their families. These schemes include sponsorship programmes, informative websites, mentoring projects and scholarships, all of which work towards improving the quality of life for those affected by severe diseases.
Canine Assistants programme
Canine Assistants was founded in Alpharetta, Georgia, in 1991. This nonprofit organization is dedicated to providing service dogs to children and adults with epilepsy, physical disabilities, and other special needs.
Special dogs with special training
Seizure response dogs:
- Retrieve a phone prior to a seizure
- Summon help in a controlled environment
- Stay with their person during a seizure
These dogs not only provide assistance, they can instill confidence by enabling their recipient to do activities they may be reluctant to do because they have epilepsy. They also provide companionship and contribute to the overall emotional well-being of the person they are placed with.
Seizure response dog training is made possible by UCB, Inc.
Seizure response dogs immediately change lives for their owners, but their extensive training can take up to 18 months.
That's why Canine Assistants work together with The Epilepsy CompanyTM, UCB, Inc. in the training of every dog. Their partnership ensures that each dog gets the extensive training that it needs, and that more needs of the epilepsy community are met.
